The Patient-Centricity Session

The Patient-Centricity and Digital Innovation Session at Frontiers Health 2019, which I had the great pleasure of producing and hosting, with the support of the Frontiers Health Team and in particular Elena Pirofalo, was standing-room only. The topic is of great interest and the panel was quite diversified, with 7 speakers living in as many countries and representing patients, providers, industry, start-ups, digital consultancies.

A special shout-out to  Open Project Diabetes for being a truly patient-driven initiative with results. Thank you Saskia Wolf for leading the way for us at this session.

Each member of the session contributed a quote of his or her key messages. Thank you to each speaker for your very sincere participation, which helped maintain the attention of the audience, despite the overflow conditions. As regards the three day conference in its entirety, bravo to Roberto Ascione, Luigi Pavia, Antonietta Panella for the professionalism at Frontiers Health and the resources deployed. And it was great to meet up again with friends Eugene Borukhovich, Fredrik Debong, Paul Tunnah, of the conference committee.

For myself,  Denise Silber, founder of Doctors 2.0 & You, “Two very different new tools are furthering  patient-centricity:  1) patient-included congresses are  bringing patients and clinicians together at important moments 2) VR or Virtual Reality therapy, which requires seeing from the patient’s perspective, in order to produce relevant content.”

Saskia Wolf, – OPEN team. “OPEN is a patient-led, international and multi-disciplinary research project which examines what academia, industry and people with diabetes can learn from each other towards the goal of making artificial pancreas technology available to everyone.” Visit our website: https://open-diabetes.eu

Rhea Mehta,PhD, Co-founder Bowhead Health. “We believe the future of health data management uses blockchain and smart contract technology to enable people to own and manage their data, promoting empowerment and the consensual sharing of diverse, real-time, real world data with researchers.”

Simon Ip, – Digital Comm. LEO Pharma A/S “To be patient-centric means to put the patient first and to get them involved in the process as early as possible. Concerning the relationship between patient-centricity and digital health, technology is a tool that helps us better understand the patient’s need and come up with better, more efficient and personalized solutions.”

Elena Pirofalo, – Head of Experience, Healthware Group “People are the engine of transformation in healthcare. Supporting people and patients in their journey towards being more empowered is where digital health can be very effective. This is why we believe in needs-driven innovation, producing things that people need to solve real problems and create actual value.”

Towa Jexmark – M.D. Ramsay GDS. “Digital when possible – physical when needed.” We need to develop new services seamlessly for patients and integrated into a digi-physical world.

Luigi Capani – Innovation- Roche. “A movement is forming to help people facing severe diseases, beyond providing great medicines and diagnoses. We are genuinely exploring fundamental human needs to develop services that are personal, available globally, sustainable. Everyone deserves to live their best life.”

And thank you to Melania de Luca for helping us during the session with the slides and the photos.  Denise Silber

The post #FH19 Patient-Centricity and Digital Innovation @FrontiersHealth 2019 appeared first on Doctors 2.0.

(left to right) Denise Silber, Hila Azadzoy, Raquel Correia, Larisa Kryuchokova, Anne Seubert, Benjamin Suhr

The Conference The topic is essential, and so I proposed to Frontiers Health conference on November 15-16 in Berlin,  the following session on “patient-centricity” in order to explore where we are and the state of best practices.

Definitions FYI, while there is no formal agreement on patient-centricity, the NIH  defines patient-centered care as  “health care that establishes a partnership among practitioners, patients, and their families (when appropriate) to ensure that decisions respect patients’ wants, needs and preferences and solicit patients’ input on the education and support they need to make decisions and participate in their own care.”

The Diversity of our Speakers: I will be joined by a super group of people, all working to improve healthcare for patients.  Our panel includes people born on three continents, bringing seven nationalities to the table. We represent experience as patients, physicians, and managers involved in industry, start-ups, consulting.

The Interactivity of Our Session We shall introduce the session with our respective problem-solving activities in healthcare and then involve the audience in discussion and defining best practices. We will hear from Benjamin Suhr (Coloplast)  about patient-centricity practices in industry, from Hila Azadzoy (Ada Health) and Larisa Kryuchkova (Uvisio) about how start-ups are contributing to patient-centricity,  from Raquel Correia about emergency medicine and general practice, from Anne Seubert (Brands and Places) and myself, Denise Silber (Doctors 2.0 & You) about how our services respectively in bar camps and clinician congresses promote the role of the patient.

Discount code FH20ABDS

Some Insights from our Speakers

by alphabetical order

Hila Azadzoy (Ada Health) “We believe that the future of healthcare will be driven by the individual and there must be a shift in knowledge and power toward the ‘patient. By leveraging the power of technology with human medical expertise, Ada is enabling millions of people around the world to have actionable health insights at their fingertips- tailored to their needs, language, and regardless of location or resources.”

Raquel Correia (Physician)  “The patient journey in the ER is one of a kind. Patients who have been in an ER could provide feedback and help design new pathways and improve care. Every healthcare worker should, in a way or another, experience the ER as a patient. There is nothing as powerful as that to be able to spot what can be improved.”

Larisa Kryuchkova (Uvisio) “As in any startup, there are ups and downs as we advance on the market. But I am totally inspired and re-assured, after the focus groups and interviews and, as well, the spontaneous conversations with patients, that my vision as a patient start-up founder makes sense and that we are creating something that will really help others. This is the best part of my work!   

Anne Seubert (Brands and Places) “We all know that to understand someone you have to listen closely. But if you really want to understand someone you have to go on eyelevel and walk a mile in their shoes. If you want to immerse in the patients perspective  of living with a chronic condition and learn about how patients talk about, think about and feel about their condition a barcamp is the opportunity to listen, connect and foster community and collaborative wisdom amongst all of you. Ass the participants create the program it is relevant to each of them – and to you.”

Denise Silber (Doctors 2.0 & You) “We cannot underestimate the role of physicians in promoting patient-centricity. At Frontiers Health, I will speak of the importance of introducing “patient-includedness” at clinician congresses, and the work of Doctors 2.0 & You in this regard. These congresses are an important, little-used tool to bring about physician engagement as regards patient-centricity.”

The post Patientcentricity @ Frontiers Health, Berlin – Nov. 15, 2018 appeared first on Doctors 2.0.