Manifesto
Acccording to Wikipedia, a manifesto is a public declaration of principles and intentions, often political in nature.
The Doctors 2.0 TM & You manifesto is, not political. It is a collaborative work in progress, whose idea was born at the first edition of Doctors 2.0 & You in June 2011.
Our goal is to identify the ways in which the inclusion of health 2.0 tools and social media platforms can improve care and translate this into the words of a manifesto.
We shall start with a first draft, take comments, and go from there.
Our point of reference, is The Cluetrain Manifesto, a set of 95 theses put forward as a manifesto, or call to action, for all businesses operating within the newly-connected marketplace.
What does Health Care have to do with this? Everything! The Cluetrain Manifesto tells us that the market is the conversation ; the Internet facilitates the bypassing of formal hierarchies creating a more informed marketplace and consumer through those conversations. Substitute “health care” for market place and healthcare organizations for businesses, and we’re ready to move forward!
Comments (19)
Janine Buddingj
| #
The recognition of a problem or situation mostly lead to innovations that bigger positive impact on a society than high-tech health innovations
Innovation-Driven Health Care, is a Health Care that devellops care in co-creation with patients
Reply
Denise Silber
| #
So, are we possibly off for a list in the manner of Cluetrain Manifesto? Why not! Thanks Janine for a good start.
Reply
Renë Luigies
| #
The medical professional of the future has to be a team builder between social media, telemedicine, patients, healthcare providers and healthcare insurances
eHealth has to be globally acknowledged by medical professionals as a sound alternative for meeting the patient in his clinic. For this they have to refrain from income driven perverse stimuli.
Evidence Based Medicine requirements for eHealth has to be converted in Business Based Medicine
Reply
Leonard Sender
| #
The adolescent and young adult cancer patients are already embracing the concept of doctor 2.0. We need to move however from evidence based medicine to science based medicine and find a way to bring the latest research directly to the patients in an innovative new way, where the patients and the doctors are co-investigators in the search for the desired improvement
Reply
kgapo
| #
Αgree with you that EBM cannot be used as the unique tool for treatment decisions. Every human is very much different from the other, and the physician should see the person in front of him in connection to any guidelines and not vice versa. You might be interested to read the article “Every Good Doctor Must Represent the Patient: The Malfunction of Evidence-Based Medicine” by Daniel Scholten, that was published on http://www.orthomolecular.org on Jan. 3, 2012.
Researchers Steve Hickey and Hilary Roberts argue that the legalistic requirement of EBM, such as its insistence on treatments that have met the “gold standard” of “well-designed, large-scale, double-blind, randomized, placebo-controlled, clinical trials”, actually prevent doctors from effectively diagnosing and treating their patients.
Reply
Angel Gonzalez
| #
My thoughts for the Manifesto:
- Social is Healing
- “We are Smarter than Me” in coping with whatever diseases
- Social Web is leading into co-creation of the new participatory medicine
- “Stop just marketing, Start socializing”
- Bye Loneliness, Hello Community!
- From the former Isolation of the Illness to the We of the Wellness thanks to the hyperconnectivity
- Health convos at the Social Web are driven by Generosity and the Joy Factor
- World is flat, Healthcare is now Horizontal
- Diseases, treatments, healthcare actors are now convo´s at the Social Web
- Adaptative Darwin Theory is fueling the healing connections at the Social Web, it´s not Serendipity, nor forced or guided connections
- Healthcare Social Networks and online convo´s are challenging and transforming the establishment and status quo of the Healthcare arena controlling the power of education, professional and patient associations, etc
- The huge power of the healthcare convos will fall down the existing and constricting regulatory walls
Reply
Bart Brandenburg
| #
Social Media have been widely adopted thoughout the world and healthcare professionals are no different than other people in doing so.
However, ther are a few issues that need to be solved.
1. SoMe are primarily used to teach and to learn and hardly at all to treat. Since treating patients is Healthcare’s core business, SoMe have not reached that core enough yet.
2. We need to “Mind the Gap”. There is a gap between SoMe networks of patients and those of healthcare professionals. Bridging the gap will bring us a a step further.
3. There may be a need for more robust platforms for safe use of SoMe in healthcare. However, we should not focus on technology too much and we should certainly not use this argument as a reason to postpone innovation!
Reply
David Lee Scher, MD
| #
It is patient-centric care that is a hybrid of Internet-based education, mHealth technologies, telehealth, and provider supervision and visits. The key is that the patient is the source of critical information and engagement.
Reply
Michaela Endemann
| #
The question is not whether physicians or healthcare opinion leaders have to use social networks or have to blog, but if they are aware of challenges and social responsibility in times of epatients, ehealth and never ending online healthinformation. There is a need of an active and critical role in digital public space.
Reply
kgapo
| #
Indeed, physicians should get out of their ivory tower and understand the social changes, their role in healthcare systems, that in many countries are in dire straits, the emergence of a new breed of patients. Patients who come to the medical appointment, already basically informed about their symptoms and who are eager to understand more and actively cooperate with their doctors. The internet had the catalyst role of democratising medical knowledge that was till a few years ago only in the realm of health professionals.
Reply
Adebusuyi Adeyemi
| #
Given the relatively low number of healthcare organizations that have actually deployed an optimized mobile website, I’m curious to hear from others: Do you think it’s enough for your healthcare organization to just be online?
Mobile internet access is not a mere fad – widespread adoption of mobile communications means an investment in mobile development now can set your healthcare organization apart. Hospital websites that are optimized for smartphone browsers:
• Better attract new patients who are looking for healthcare information on their smartphones. People have come to expect easy access to information on their smartphones, so if potential patients find it easier to use your website, they will probably turn to you for their healthcare needs. On the flip side, if your organization does not provide easy access, they may browse to another site that does.
• Boost their patient satisfaction scores. Because mobile users have global access to information and people anywhere, anytime, and anyplace, mobile tools help improve communications with patients, as well as physicians, other care providers and employees. But I’m just curious…[this is perhaps more applicable to US hospital types]
Reply
JP Groot
| #
Co-creation and transparency are key. SoMe and mobile access are the tools to a mean: The goal to finally share information between care givers and care takers, for (big) pharma the opportunity and obligation to communicate with patients and doctors in stead of pushing their products for their on profit focussing stakeholders.
Reply
Luis Soldevila
| #
Thanks to everyone for your interesting comments.
I think there is also one other key point about ehealth that needs to be underlined:
- The public access and use of the information about health (diseases, diagnostic, treatments…). Internet has brought a huge quantity of information to patients and general public, who often are not instructed in health basis and so are not capable of correctly interpreting what they learn on the web.
Health professional community, along with governmental administrations and other stakeholders, have the capacity of reconducting this situation.
Reply
Rhonda Soest
| #
Another aspect that should not be ignored is the impact access to eHeath information can have on patients. Particularly those with chronic diseases. The ability to access, view, monitor and communicate with the medical community can have a profound impact on QOL scores and have a positive healthcare economic impact as well.
Reply
kgapo
| #
The internet and ehealth are also two excellent tools in the hands of healthcare policy makers: they offer the possibility to quickly adapt to changing scientific and socio-economic conditions in healthcare. Are however, government bodies and institutions ready to use the potential offered by the internet and web2.0?
Reply
Janine Budding
| #
Withe the use of E-health, SoMe, self-management in Health Care, productivity gain can 1 billions euros. It can make care more efficient than it is today. This reduces the nurses, doctors, psychiatrists, etc. needed. In short: smaller staff shortages in health care. Also limits the growth of health spending. Large-scale investment in e-health and self-management concepts provide significant savings for business and insurances. E-health, telecare and self management is available outside work hours for lower costs than normal daytime healthcare. So significant productivity gains will be realized. Still the potential of e-health and self-management is underused.
Reply
kparekh
| #
Social media and all things internet are just tools for achieving wider communications. Imagine a world where every individual had the option to speak to the best doctors in the world, where getting multiple opinions or an average opinion on a condition was possible. Collaboration is big on the web, is it something patients can take advantage of? Could collaborative medicine change the level of care some third world patients receive..?
Reply
Felix Jackson
| #
The ways I think digital tools, apps and social media will change healthcare can be summarised in the following areas. Clearly this is not comprehensive!
Access to information
Patients can now access a huge amount of high-quality information. Information that can be used for self-care and to understand when to seek professional care. Increasing a patient’s ability to affect the course of their disease and decreasing their need to use the established healthcare system.
Access to misinformation
Unfortunately a substantial proportion of this information is inaccurate or not applicable to a patient’s specific situation. This can result in people believing they are informed when they are not. This can lead to greater morbidity and mortality across patient populations as misinformation is spread (eg the crisis in confidence in MMR vaccine that led to a resurgence of measles and a rise in infant mortality).
Scientific and professional collaboration
Social media brings an unprecedented ability for people to collaborate continuously on a global basis. This will enable scientists to quicken the pace of discovery and research leading to a greater understanding of disease with better treatments faster than ever before.
Community and communication
The internet enables communities to form and people within those communities to communicate. This enables the support of patients by patients, particularly in certain disease areas like rare diseases where there may not be anyone with the disease nearby. This also enables the interpretation of the wealth of information based on personal experience so patients can understand the difference between the information and misinformation (but it can propagate misinformation). These both help patients to be more informed and better supported, again without using the established healthcare systems.
Technological advance
Smartphones now have more computer power than most medical devices. They are enabling remote monitoring and investigation like never before. This will change healthcare by removing the need to visit healthcare centres and enable the monitoring of a patient’s condition continuously. These will change the way diseases and their burden on patients are understood, leading to new treatments and better care.
We are lucky that the world has now changed for ever. But, it may be a better place to be sick, but there are still too many people who are.
Reply
David Townson
| #
Social media offers us the advantage to reach out across multiple generations of patients to increase the dissemination of information. However, it also represents some challlenges – take for example emerging US regulations regarding physician/pharma interactions: At the heart of the issue is ensuring that the content complies with regulations, etc. Social media will have to fall in line with the spirit of these regulations.
Reply