Doctors 2.0 & You Manifesto
Acccording to Wikipedia, a manifesto is a public declaration of principles and intentions, often political in nature. The Doctors 2.0 TM & You manifesto is not political. It is a collaborative work in progress; V1 was presented in May 2012 by Janine Budding who collated the list of declarations, collected in English and French. Have a look at where we are now!
Our goal is to identify the ways in which the inclusion of health 2.0 tools and social media platforms can improve care and translate this into the words of a manifesto. Our point of reference, is The Cluetrain Manifesto, a set of 95 theses put forward as a manifesto, or call to action, for all businesses operating within the newly-connected marketplace.
What does Health Care have to do with this? Everything! The Cluetrain Manifesto tells us that the market is the conversation ; the Internet facilitates the bypassing of formal hierarchies creating a more informed marketplace and consumer through those conversations. Substitute “health care” for market place and healthcare organizations for businesses, and we’re ready to move forward!
Doctors 2.0 & You Manifesto in 85 sentences
1. Health is co-creation.
2. Health 2.0 is win-win: care actors are better trained to support a more informed patient.
3. Health 2.0 is a permanent round table between all actors in society for the creation
of a citizenship of health … all members of the same team!
4. Social Media have been widely adopted throughout the world and healthcare; professionals are no different than other people
5. “We are Smarter than Me” in coping with disease.
6. The Social Web is leading into co-creation of a new participatory medicine
7. Let’s go from the former Isolation of Illness to the We of the Wellness thanks to hyper connectivity.
8. Physicians should understand the social changes and their changed role in healthcare
systems, (which in many countries are in dire straits) and the emergence of a new breed of
patients.
9. Social media brings an unprecedented ability for people to collaborate continuously
on a global basis. This will enable scientists to quicken the pace of discovery and
research leading to a greater understanding of disease with better treatments faster
than ever before.
10. Social media includes the challenging issue whether the content complies with
regulations. Social media will have to fall in line with the spirit of these regulations.
11. Social media offers us the advantage to reach out across multiple generations of
patients to increase the dissemination of information
12. There is a need for an active and critical role in the digital public space.
13. We need to “Mind the Gap” between social media networks of patients and those of
healthcare professionals. Bridging the gap will bring us a a step further.
14. Patient-centric care is a hybrid of Internet-based education, mHealth
technologies, telehealth, and provider supervision and visits.
15. The key is that the patient is the source of critical information and engagement.
16. Social medias are primarily used to teach and to learn and hardly at all to treat. Since treating
patients is Healthcare’s core business, these networks have not reached that core yet.
17. Health convos on the Social Web are driven by Generosity and the Joy Factor.
18. The World is flat. Healthcare is now Horizontal.
19. There may be a need for more robust platforms for safe use of SoMe in healthcare.
20. We should not focus on technology too much and we should certainly not use this
argument as a reason to postpone innovation.
21. Diseases, treatments, healthcare actors are now convos on the Social Web
22. Adaptative Darwin Theory is fueling the healing connections at the Social Web; it´s
not Serendipity, nor forced or guided connections
23. Healthcare Social Networks and online conversations are challenging and transforming
the establishment and status quo of the Healthcare arena controlling the power of
education, professional and patient associations, etc
24. The question is not whether physicians or healthcare opinion leaders have to
use social networks or have to blog, but if they are aware of the challenges and
social responsibility in these times of epatients, ehealth and never ending online
health information.
25. The huge power of healthcare conversations will bring down the existing and constricting
regulatory walls
26. A patient is not a diagnosis but a human being in need of compassion.
27. Health 2.0 should improve the quality of exchange and management of patients
when involving all stakeholders; professionals & patients 2.0.
28. Medical professionals of the future have to be team builders between social media,
telemedicine, patients, healthcare providers and healthcare insurance and payers.
29. We need to move from evidence based medicine to science-based medicine and find
a way to bring the latest research directly to the patients, doctors.
30. The Internet is enabling conversations among patients and doctors that were simply
not possible in the era before the mass use of internet.
31. TeleHealth has to be globally acknowledged by medical professionals as a sound
alternative for meeting the patient in his clinic.
32. With the introduction of eHealth, medical professionals have to refrain from income
driven perverse stimuli.
33. The Internet provides us with new ways to bring the latest research directly
to patients and the doctors are co-investigators in the search for the desired
improvement of Health care.
34. These networked conversations are enabling powerful new forms of social
organization and knowledge exchange to emerge.
35. As a result, patients are getting smarter, more informed, more organized.
Participation in their treatment changes healthcare fundamentally.
36. Crowdsourcing patients and doctors have figured out that they get far better
information and support from one another than from books and research. Health
care in co-creation is about adding value to the quality and speed of treatments for
common and rare diseases.
37. “Stop just marketing, Start socializing” Bye Loneliness, Hello Community!
38. Patients who come to the medical appointment with information about their
symptoms are eager to understand what needs to be done to cure their
disease and are more actively engaged with their doctors.
39. There are no secrets. The networked crowd knows more than a doctor or hospital
does about their own products. And whether their treatment is good or bad, they tell
everyone.
40. “Stop just marketing, Start socializing”
41. The legalistic requirements of EBM, such as its insistence on treatments that have
met the “gold standard” of “well-designed, large-scale, double-blind, randomized,
placebo-controlled, clinical trials”, actually prevent doctors from effectively
diagnosing and treating patients.
42. Social is Healing
43. Imagine a world where every individual had the option to speak to the best doctors in
the world, where getting multiple opinions or an average opinion on a condition was
possible.
44. Collaborative medicine will change the level of care some third world patients
receive
45. The internet had the catalyst role of democratizing medical knowledge that was until a
few years ago only in the realm of health professionals
46. In just a few more years, the distant “voice” of doctors as the sound of the medical
profession will seem as contrived and artificial as the language of the 18th
century French court.
47. The recognition of a problem or situation mostly leads to innovations that have greater
positive impact on a society than high-tech health innovations
48. Healthcare organizations that think it’s enough for a healthcare organization to
just be online misunderstand the potential of an optimized mobile
website, for their communication with patients and future patients
49. Health care workers that don’t realize that their markets are now networked person-to-
person, getting smarter as a result and deeply joined in conversation are missing
their best opportunity.
50. Mobile internet access is not a mere fad; widespread adoption of mobile
communications means that an investment in mobile development now can set your
healthcare organization apart.
51. Hospital websites that are optimized for smartphone browsers better attract new
patients
52. Hospital websites that are optimized for smartphone browsers boost their patient
satisfaction scores.
53. Co-creation and transparency are key
54. Medical care should be easily accessible at all reasonable hours
55. A patient must able to get in a doctor’s advice within 48 hours.
56. Social Media and mobile access are the tools to finally share information between
caregivers and care takers and for (big) pharma; the opportunity and obligation to
communicate with patients and doctors instead of pushing their products
on profit focusing stakeholders.
57. Patients can now access a huge amount of high-quality information that
can be used for self-care and to understand when to seek professional care.
58. Access to information will increase a patient’s ability to affect the course of their
disease and decrease their need to use the established healthcare system.
59. A key point for eHealth is the public access and use of the information about health
(diseases, diagnostic, treatments…), but the huge quantity of information to patients
and general public are difficult to interpret, because of the lack of
medical education.
60. Through eHeath information, patients have the ability to access, view, monitor and
communicate with the medical community that can have a profound impact on QOL
scores and have a positive healthcare economic impact
61. Medical information on the internet with a proportion of information not applicable to a patient’s specific situation can result in people
believing they are informed when they are not.
62. The internet and eHealth are excellent tools in the hands of healthcare policy makers:
they offer the possibility to quickly adapt to changing scientific and socio-economic
conditions in healthcare
63. Decisions on policies that regulate public health must be submitted to the public, so
that citizens express their opinions freely.
64. The views of citizens on a decision of public health policy must be subjected
to assessment
65. The Internet is the most suitable means to encourage public participation in
evaluating the decisions of public authorities.
66. With the use of eHealth, SoMe, self-management in Health Care, productivity gain
can reach 1 billion euros
67. eHealth reduces the amount of nurses, doctors, psychiatrists and thus smaller staff
shortages in health care.
68. eHealth limits the growth of health spending: large-scale investment in e-health and
self-management concepts provide significant savings for business and insurances.
69. E-health, telecare and self management are available outside work hours for lower
costs than normal daytime healthcare. Significant productivity gains will be realized.
70. The potential of e-health and self-management is underused.
71. Innovation-Driven Health Care, is health care that develops care in co-creation with
patients
72. One human is different from the other, the physician should see the person in
front of him in connection to any guideline and not vice versa
73. The internet enables communities to form and people within those communities
to communicate. This enables the support of patients by patients, particularly in
certain disease areas like rare diseases where there may not be anyone with the
disease nearby. And enables the interpretation of the wealth of information based
on personal experience so patients can understand the difference between the
information and misinformation (but it can propagate misinformation). These both
help patients to be more informed and better supported, again without using the
established healthcare systems.
74. Smartphones now have more computer power than most medical devices.
75. Smartphones are enabling remote monitoring and investigation. This will change
healthcare by removing the need to visit healthcare centers and enable the
monitoring of a patient’s condition continuously.
76. Smartphones will change the way diseases and their burden on patients are
understood, leading to new treatments and better care.
77. Public Relations does not relate to the public. Healthcare companies are afraid of
communicating with all their patients: happy and unhappy patients
78. Compassion for care is not a parlor trick to pick up.
79. Command-and-control management styles both derive from and reinforce
bureaucracy, power tripping and an overall culture of paranoia.
80. Paranoia kills conversation. That’s its point. And lack of open conversation kills
healthcare organizations.
81. Patients have real power and they know it.
82. Patients like this Health 2.0 much better. In fact, the are co-creating it.
83. Patients have got some ideas for you too: some new skills you need, some better
service and lots of new tools for telecare. New stuff that saves time and money.
84. We know some doctors. They’re pretty cool online. Do you have any more like them?
You’re hiding in hospitals and healthcare institutions? Can they come out and play?
85. When patients have questions they turn to each other for answers. If doctors didn’t
have such a tight paradigm maybe they’d be among the people we’d turn to.
Comments (21)
Janine Buddingj
| #
The recognition of a problem or situation mostly lead to innovations that bigger positive impact on a society than high-tech health innovations
Innovation-Driven Health Care, is a Health Care that devellops care in co-creation with patients
Reply
Denise Silber
| #
So, are we possibly off for a list in the manner of Cluetrain Manifesto? Why not! Thanks Janine for a good start.
Reply
Renë Luigies
| #
The medical professional of the future has to be a team builder between social media, telemedicine, patients, healthcare providers and healthcare insurances
eHealth has to be globally acknowledged by medical professionals as a sound alternative for meeting the patient in his clinic. For this they have to refrain from income driven perverse stimuli.
Evidence Based Medicine requirements for eHealth has to be converted in Business Based Medicine
Reply
Leonard Sender
| #
The adolescent and young adult cancer patients are already embracing the concept of doctor 2.0. We need to move however from evidence based medicine to science based medicine and find a way to bring the latest research directly to the patients in an innovative new way, where the patients and the doctors are co-investigators in the search for the desired improvement
Reply
kgapo
| #
Αgree with you that EBM cannot be used as the unique tool for treatment decisions. Every human is very much different from the other, and the physician should see the person in front of him in connection to any guidelines and not vice versa. You might be interested to read the article “Every Good Doctor Must Represent the Patient: The Malfunction of Evidence-Based Medicine” by Daniel Scholten, that was published on http://www.orthomolecular.org on Jan. 3, 2012.
Researchers Steve Hickey and Hilary Roberts argue that the legalistic requirement of EBM, such as its insistence on treatments that have met the “gold standard” of “well-designed, large-scale, double-blind, randomized, placebo-controlled, clinical trials”, actually prevent doctors from effectively diagnosing and treating their patients.
Reply
Angel Gonzalez
| #
My thoughts for the Manifesto:
- Social is Healing
- “We are Smarter than Me” in coping with whatever diseases
- Social Web is leading into co-creation of the new participatory medicine
- “Stop just marketing, Start socializing”
- Bye Loneliness, Hello Community!
- From the former Isolation of the Illness to the We of the Wellness thanks to the hyperconnectivity
- Health convos at the Social Web are driven by Generosity and the Joy Factor
- World is flat, Healthcare is now Horizontal
- Diseases, treatments, healthcare actors are now convo´s at the Social Web
- Adaptative Darwin Theory is fueling the healing connections at the Social Web, it´s not Serendipity, nor forced or guided connections
- Healthcare Social Networks and online convo´s are challenging and transforming the establishment and status quo of the Healthcare arena controlling the power of education, professional and patient associations, etc
- The huge power of the healthcare convos will fall down the existing and constricting regulatory walls
Reply
Bart Brandenburg
| #
Social Media have been widely adopted thoughout the world and healthcare professionals are no different than other people in doing so.
However, ther are a few issues that need to be solved.
1. SoMe are primarily used to teach and to learn and hardly at all to treat. Since treating patients is Healthcare’s core business, SoMe have not reached that core enough yet.
2. We need to “Mind the Gap”. There is a gap between SoMe networks of patients and those of healthcare professionals. Bridging the gap will bring us a a step further.
3. There may be a need for more robust platforms for safe use of SoMe in healthcare. However, we should not focus on technology too much and we should certainly not use this argument as a reason to postpone innovation!
Reply
David Lee Scher, MD
| #
It is patient-centric care that is a hybrid of Internet-based education, mHealth technologies, telehealth, and provider supervision and visits. The key is that the patient is the source of critical information and engagement.
Reply
Michaela Endemann
| #
The question is not whether physicians or healthcare opinion leaders have to use social networks or have to blog, but if they are aware of challenges and social responsibility in times of epatients, ehealth and never ending online healthinformation. There is a need of an active and critical role in digital public space.
Reply
kgapo
| #
Indeed, physicians should get out of their ivory tower and understand the social changes, their role in healthcare systems, that in many countries are in dire straits, the emergence of a new breed of patients. Patients who come to the medical appointment, already basically informed about their symptoms and who are eager to understand more and actively cooperate with their doctors. The internet had the catalyst role of democratising medical knowledge that was till a few years ago only in the realm of health professionals.
Reply
Adebusuyi Adeyemi
| #
Given the relatively low number of healthcare organizations that have actually deployed an optimized mobile website, I’m curious to hear from others: Do you think it’s enough for your healthcare organization to just be online?
Mobile internet access is not a mere fad – widespread adoption of mobile communications means an investment in mobile development now can set your healthcare organization apart. Hospital websites that are optimized for smartphone browsers:
• Better attract new patients who are looking for healthcare information on their smartphones. People have come to expect easy access to information on their smartphones, so if potential patients find it easier to use your website, they will probably turn to you for their healthcare needs. On the flip side, if your organization does not provide easy access, they may browse to another site that does.
• Boost their patient satisfaction scores. Because mobile users have global access to information and people anywhere, anytime, and anyplace, mobile tools help improve communications with patients, as well as physicians, other care providers and employees. But I’m just curious…[this is perhaps more applicable to US hospital types]
Reply
JP Groot
| #
Co-creation and transparency are key. SoMe and mobile access are the tools to a mean: The goal to finally share information between care givers and care takers, for (big) pharma the opportunity and obligation to communicate with patients and doctors in stead of pushing their products for their on profit focussing stakeholders.
Reply
Luis Soldevila
| #
Thanks to everyone for your interesting comments.
I think there is also one other key point about ehealth that needs to be underlined:
- The public access and use of the information about health (diseases, diagnostic, treatments…). Internet has brought a huge quantity of information to patients and general public, who often are not instructed in health basis and so are not capable of correctly interpreting what they learn on the web.
Health professional community, along with governmental administrations and other stakeholders, have the capacity of reconducting this situation.
Reply
Rhonda Soest
| #
Another aspect that should not be ignored is the impact access to eHeath information can have on patients. Particularly those with chronic diseases. The ability to access, view, monitor and communicate with the medical community can have a profound impact on QOL scores and have a positive healthcare economic impact as well.
Reply
kgapo
| #
The internet and ehealth are also two excellent tools in the hands of healthcare policy makers: they offer the possibility to quickly adapt to changing scientific and socio-economic conditions in healthcare. Are however, government bodies and institutions ready to use the potential offered by the internet and web2.0?
Reply
Janine Budding
| #
Withe the use of E-health, SoMe, self-management in Health Care, productivity gain can 1 billions euros. It can make care more efficient than it is today. This reduces the nurses, doctors, psychiatrists, etc. needed. In short: smaller staff shortages in health care. Also limits the growth of health spending. Large-scale investment in e-health and self-management concepts provide significant savings for business and insurances. E-health, telecare and self management is available outside work hours for lower costs than normal daytime healthcare. So significant productivity gains will be realized. Still the potential of e-health and self-management is underused.
Reply
kparekh
| #
Social media and all things internet are just tools for achieving wider communications. Imagine a world where every individual had the option to speak to the best doctors in the world, where getting multiple opinions or an average opinion on a condition was possible. Collaboration is big on the web, is it something patients can take advantage of? Could collaborative medicine change the level of care some third world patients receive..?
Reply
Felix Jackson
| #
The ways I think digital tools, apps and social media will change healthcare can be summarised in the following areas. Clearly this is not comprehensive!
Access to information
Patients can now access a huge amount of high-quality information. Information that can be used for self-care and to understand when to seek professional care. Increasing a patient’s ability to affect the course of their disease and decreasing their need to use the established healthcare system.
Access to misinformation
Unfortunately a substantial proportion of this information is inaccurate or not applicable to a patient’s specific situation. This can result in people believing they are informed when they are not. This can lead to greater morbidity and mortality across patient populations as misinformation is spread (eg the crisis in confidence in MMR vaccine that led to a resurgence of measles and a rise in infant mortality).
Scientific and professional collaboration
Social media brings an unprecedented ability for people to collaborate continuously on a global basis. This will enable scientists to quicken the pace of discovery and research leading to a greater understanding of disease with better treatments faster than ever before.
Community and communication
The internet enables communities to form and people within those communities to communicate. This enables the support of patients by patients, particularly in certain disease areas like rare diseases where there may not be anyone with the disease nearby. This also enables the interpretation of the wealth of information based on personal experience so patients can understand the difference between the information and misinformation (but it can propagate misinformation). These both help patients to be more informed and better supported, again without using the established healthcare systems.
Technological advance
Smartphones now have more computer power than most medical devices. They are enabling remote monitoring and investigation like never before. This will change healthcare by removing the need to visit healthcare centres and enable the monitoring of a patient’s condition continuously. These will change the way diseases and their burden on patients are understood, leading to new treatments and better care.
We are lucky that the world has now changed for ever. But, it may be a better place to be sick, but there are still too many people who are.
Reply
David Townson
| #
Social media offers us the advantage to reach out across multiple generations of patients to increase the dissemination of information. However, it also represents some challlenges – take for example emerging US regulations regarding physician/pharma interactions: At the heart of the issue is ensuring that the content complies with regulations, etc. Social media will have to fall in line with the spirit of these regulations.
Reply
Janine Budding, MedicalFacts
| #
This is the manifesto Doctors 2.0 deducted from all your responses. Our point of reference, was The Cluetrain Manifesto, a set of 95 theses put forward as a manifesto, or call to action, for all businesses operating within the newly-connected marketplace.
What does Health Care have to do with this? Everything! The Cluetrain Manifesto tells us that the market is the conversation ; the Internet facilitates the bypassing of formal hierarchies creating a more informed marketplace and consumer through those conversations.
1. Health is co-creation
2. Health 2.0 is win-win: care actors are better trained to support a more informed patient.
3. Health 2.0 as a permanent round table between all actors in society for the creation of a citizenship of health … all members of the same team!
4. Social Media have been widely adopted throughout the world and healthcare professionals are no different than other people in doing so.
5. “We are Smarter than Me” in coping with whatever diseases
6. Social Web is leading into co-creation of the new participatory medicine
7. From the former Isolation of the Illness to the We of the Wellness thanks to the hyperconnectivity
8. Physicians should understand the social changes and their changed role in healthcare systems, that in many countries are in dire straits, the emergence of a new breed of patients.
9. Social media brings an unprecedented ability for people to collaborate continuously on a global basis. This will enable scientists to quicken the pace of discovery and research leading to a greater understanding of disease with better treatments faster than ever before.
10. Social media includes the challenging issue wether the content complies with regulations. Social media will have to fall in line with the spirit of these regulations.
11. Social media offers us the advantage to reach out across multiple generations of patients to increase the dissemination of information
12. There is a need for an active and critical role in digital public space.
13. We need to “Mind the Gap” between SoMe networks of patients and those of healthcare professionals. Bridging the gap will bring us a a step further.
14. It is patient-centric care that is a hybrid of Internet-based education, mHealth technologies, telehealth, and provider supervision and visits.
15. The key is that the patient are the source of critical information and engagement.
16. SoMe are primarily used to teach and to learn and hardly at all to treat. Since treating patients is Healthcare’s core business, SoMe have not reached that core enough yet
17. Health convos at the Social Web are driven by Generosity and the Joy Factor
18. World is flat, Healthcare is now Horizontal
19. There may be a need for more robust platforms for safe use of SoMe in healthcare.
20. We should not focus on technology too much and we should certainly not use this argument as a reason to postpone innovation.
21. Diseases, treatments, healthcare actors are now convo´s at the Social Web
22. Adaptative Darwin Theory is fueling the healing connections at the Social Web, it´s not Serendipity, nor forced or guided connections
23. Healthcare Social Networks and online convo´s are challenging and transforming the establishment and status quo of the Healthcare arena controlling the power of education, professional and patient associations, etc
24. The question is not whether physicians or healthcare opinion leaders have to use social networks or have to blog, but if they are aware of challenges and social responsibility in times of epatients, ehealth and never ending online healthinformation.
25. The huge power of the healthcare convos will fall down the existing and constricting regulatory walls
26. A patient is not a diagnosis but a human being in need of compassion.
27. Health 2.0 should improve the quality of exchange and management of patients when involving all stakeholders; professionals & patients 2.0.
28. Medical professionals of the future have to be team builders between social media, telemedicine, patients, healthcare providers and healthcare insurances
29. We need to move from evidence based medicine to science based medicine and find a way to bring the latest research directly to the patients, doctors.
30. The Internet is enabling conversations among patienst and doctors that were simply not possible in the era before the mass use of internet.
31. eHealth has to be globally acknowledged by medical professionals as a sound alternative for meeting the patient in his clinic.
32. With the introduction of eHealth medical professionals have to refrain from income driven perverse stimuli.
33. The internet provides us with new ways to bring the latest research directly to patients and the doctors are co-investigators in the search for the desired improvement of Health care.
34. These networked conversations are enabling powerful new forms of social organization and knowledge exchange to emerge.
35. As a result, patients are getting smarter, more informed, more organized. Participation in their treatment changed healthcare fundamentally.
36. Crowdsourcing patients and doctors have figured out that they get far better information and support from one another than from books and research. Health care in co-cretion is about adding value to the quality and speed of treatments for common and rare diseases.
37. “Stop just marketing, Start socializing” Bye Loneliness, Hello Community!
38. Patients who come to the medical appointment with information about their symptoms and are eager to understand what needs to be done to cure their deseaese and are more actively engaged with their doctors.
39. There are no secrets. The networked crowd knows more than a doctor or hospital do about their own products. And whether their treatment is good or bad, they tell everyone.
40. “Stop just marketing, Start socializing”
41. The legalistic requirement of EBM, such as its insistence on treatments that have met the “gold standard” of “well-designed, large-scale, double-blind, randomized, placebo-controlled, clinical trials”, actually prevent doctors from effectively diagnosing and treating patients.
42. Social is Healing
43. Imagine a world where every individual had the option to speak to the best doctors in the world, where getting multiple opinions or an average opinion on a condition was possible
44. Collaboration medicine will change the level of care some third world patients receive
45. The internet had the catalyst role of democratising medical knowledge that was till a few years ago only in the realm of health professionals
46. In just a few more years, the distant “voice” of doctors—as the sound of the medical professionalist —will seem as contrived and artificial as the language of the 18th century French court.
47. The recognition of a problem or situation mostly lead to innovations that have bigger positive impact on a society than high-tech health innovations
48. Healthcare organizations that think it’s enough for a healthcare organization to just be online misunderstand the big potential of an deployed an optimized mobile website, for their communication with the patients and future patients
49. Health care workers that don’t realize their markets are now networked person-to-person, getting smarter as a result and deeply joined in conversation are missing their best opportunity.
50. Mobile internet access is not a mere fad – widespread adoption of mobile communications means an investment in mobile development now can set your healthcare organization apart.
51. Hospital websites that are optimized for smartphone browsers Better attract new patients
52. Hospital websites that are optimized for smartphone browsers boost their patient satisfaction scores.
53. Co-creation and transparency are key
54. Medical care should be easily accessible at all reasonable hours
55. A patient must able to get in a doctors advise within a 48 hours.
56. Social Media and mobile access are the tools to finally share information between care givers and care takers, for (big) pharma the opportunity and obligation to communicate with patients and doctors in stead of pushing their products for their on profit focussing stakeholders.
57. Patients can now access a huge amount of high-quality information. Information that can be used for self-care and to understand when to seek professional care.
58. Access to information will increase a patient’s ability to affect the course of their disease and decrease their need to use the established healthcare system.
59. Key point for eHealth is the public access and use of the information about health (diseases, diagnostic, treatments…), but the huge quantity of information to patients and general public are difficult to be correctly interpreted, because of the lack of medical education.
60. Through eHeath information patients have the ability to access, view, monitor and communicate with the medical community tha can have a profound impact on QOL scores and have a positive healthcare economic impact
61. Medical information on the internet with a substantial proportion of inaccurate information or not applicable to a patient’s specific situation can result in people believing they are informed when they are not.
62. Inaccurate medical information will lead to greater morbidity and mortality across patient populations as misinformation is spread uncontrolled or without certification.
63. The internet and eHealth are excellent tools in the hands of healthcare policy makers: they offer the possibility to quickly adapt to changing scientific and socio-economic conditions in healthcare
64. Decisions on policies that regulate public health must be submitted to the public, so that citizens express their opinions freely.
65. Expressed the views of citizens on a decision of public health policy must be subject to assessment in order of their inclusion
66. The internet is the most suitable means to encourage public participation in evaluating the decisions of public authorities.
67. With the use of eHealth, SoMe, self-management in Health Care, productivity gain can so 1 billions of euros will be saved
68. eHealth reduces the amont of nurses, doctors, psychiatrists and thus smaller staff shortages in health care.
69. eHealth limits the growth of health spending: Large-scale investment in e-health and self-management concepts provide significant savings for business and insurances.
70. E-health, telecare and self management are available outside work hours for lower costs than normal daytime healthcare. Significant productivity gains will be realized.
71. The potential of e-health and self-management is underused.
72. Innovation-Driven Health Care, is Health Care that devellops care in co-creation with patients
73. One human is much different than the other, the physician should see the person in front of him in connection to any guideline and not vice versa
74. The internet enables communities to form and people within those communities to communicate.
75. The internet enables the support of patients by patients, particularly in certain disease areas like rare diseases where there may not be anyone with the disease nearby.
76. The internet enables the interpretation of the wealth of information based on personal experience so patients can understand the difference between the information and misinformation (but it can propagate misinformation).
77. The internet helps patients to be more informed and better supported, again without using the established healthcare systems.
78. Smartphones now have more computer power than most medical devices.
79. Smartphones are enabling remote monitoring and investigation. This will change healthcare by removing the need to visit healthcare centres and enable the monitoring of a patient’s condition continuously.
80. Smartphones will change the way diseases and their burden on patients are understood, leading to new treatments and better care.
81. Public Relations does not relate to the public. Healthcare companies are afraid of communicating with all their patients: happy and unhappy patients
82. Compassion for care is not a parlor trick. It can’t be “picked up” at some conference.
83. Command-and-control management styles both derive from and reinforce bureaucracy, power tripping and an overall culture of paranoia.
84. Paranoia kills conversation. That’s its point. And lack of open conversation kills healthcare organisations.
85. Patients have real power and they know it.
86. Patients like this Health 2.0 much better. In fact, the are co-creating it.
87. Patients have got some ideas for you too: some new skills you need, some better service and lots of new tools for telecare. New stuff that saves time and money.
88. We know some doctors. They’re pretty cool online. Do you have any more like that you’re hiding in hospitals and healthcare institutions? Can they come out and play?
89. When patients have questions they turn to each other for answers. If doctors didn’t have such a tight paradigm maybe they’d be among the people we’d turn to.
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Doctors 2.0 and You 2012: Event of the Year « ScienceRoll
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[...] from e-patients and doctors to nurses and policy makers. Don’t forget to check out the Manifesto and as usual, here are a few photos from my trip. Cité Universitaire de Paris, the amazing venue [...]
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