"Digital health is often cited as the opportunity to help bridge the gap between optimum healthcare delivery and efficiency of service; however this cannot be achieved without healthcare professionals' input and support..."
Find out more in the "Digital Doctor" report.
The digital health world today sat up and took notice today when the news shot around that Nokia is in the process of purchasing Withings, in order to jumpstart its own position in healthcare.
I had the pleasure of receiving Withings on stage in 2011 as part of the Doctors 2.0 & You start-up contest. This was before their notoriety had spread and Cedric Hutchings had to explain his concept from the ground up. I dug out the video of the presentation. You can see from this how much of a pioneer Withings was.
Come to Doctors 2.0 & You 6th edition on May 26-27, 2016 in Paris, and meet the future of digital health in the present.
Pharma R&D opens its doors to outside collaboration. Nathalie Jullian, Ipsen will explain how at Doctors 2.0 & You #doctors20
Interview #13 as we prepare for the 6th edition of Doctors 2.0 & You, is with Nathalie Jullian from Ipsen. Here we broach a new topic in digital health: how a collaborative digital platform, built with an external partner ;-), Dassault Systems, is enabling pharma to make its research and development more inclusive on both the inside and the outside.
Shouldn't all functions be able to collaborate in this way, as society becomes more participatory and boundaries diminish?
Nathalie Jullian, 2016 speaker at Doctors 2.0 & You will share the details of how this new platform came into being on May 26 in Paris. And we thank her for taking the time to do the following interview.
Q1. Let’s learn more about you professionally, Nathalie. You have some very specialized professional experience:
I started my career as a software engineer in the pharmaceutical industry, developing tools for the visualization of 2D and 3D protein structures. After a couple of years, I went back to university and started my PhD at the School of Pharmacy in molecular & structural chemistry, which is all about understanding the relationships between structure and activity. I have been working in that field since then, and there is still a lot to do and to learn.
Q2. At Ipsen you are heading up a collaborative R&D platform. What can you tell us about this platform? Are you aiming for a better collaboration both within Ipsen and between Ipsen and outside experts?
As you know Ipsen is in the middle of a digital transformation strategy. And I am co-leading a project for the implementation of a new collaborative platform for our R&D scientists. The project aims at providing an open and interactive tool to facilitate data sharing and to help navigate through internal proprietary data and public data. One component of the project is a collaborative agreement with Dassault Systèmes, the European multinational software company, and the development of new innovative tools around their 3D Experience platform. Our objectives are to improve internal processes, to support data-driven decision making and thus to accelerate Ipsen performance for the delivery of new therapeutic solutions.
Facilitating collaboration is obviously at the heart of the project, and we mean collaboration with Dassault Systèmes, within Ipsen (between countries, across business areas) and with our external partners.
Q3. Do you think collaboration in R&D is the next big trend for pharma?
Moving a drug project forward from research toward development and ultimately to the market has always been a collaborative journey. Many different departments are involved along the process ,and seamless collaboration is a key element for success.
In the past years, we meant collaboration within the company, while the ecosystem is evolving now with the incorporation of academic experts, biotech companies and other pharmaceutical partners. Also, new collaboration models are emerging with quite a few public private partnerships such as the IMI projects in Europe for example (Innovative Medicine Initiative).
We strongly believe that key collaborations will drive future success in our industry.
Q4. Are you a geek and whether you are or are not, which apps do you use most often, professionally and personally?
I do not picture myself as a “geek”, although I am familiar with quite a few apps. Having worked with different companies and in various countries, I like LinkedIn as it allows me to keep in touch with my former colleagues. I spend all of my working hours in front of a computer, so of course I do use many business oriented applications, mostly in the Drug Discovery area.
Q5. You found out about Doctors 2.0 & You through the Ipsen partnership I believe. What made you excited about participating and what will you be presenting?
It is a great opportunity to discuss with a different audience, and to present some aspects of the changes that are on-going in the pharmaceutical R&D area.
Photo below of a design workshop at Doctors 2.0 & You shows international participants learning in collaboration about "empathy" for design
See you all soon at Doctors 2.0 & You May 26-27, 2016.
Interview #12 concerns yet another exceptional individual, Geraldine Gueron, whom I have the great pleasure of introducing in this post. Geraldine, from Buenos Aires, and now citizen of the world has a wonderful vision of how worldwide, health data could be explored for the greater good. Please read on for this fascinating story.
Q1. Geraldine, I don’t know where to start to describe who you are. Your Twitter description may be the best : scientist /prostate cancer researcher /mother/ dancer / Co-founder of Wikilife.org andDataDonors.org What can you say?
I'm a cancer researcher who wanted to be a dancer, or as I commonly refer of myself: a dancer-scientist. I dance between science, data mining and health.
However my proudest achievement in life has been the wonderful family I formed with my husband Matias and my children Olympia (6 years old) and Jerónimo (4 years old).
I'm passionate when it comes to health and wellness matters. That is the reason why in 2010, I founded together with Daniel Nofal (an entrepreneur) DataDonors.org, an open data project that aggregates and shares health data over entire lifetimes, generating a growing database of information for the global community.
Q2 In our global world, people are collaborating from everywhere. You have lived most of your life in Argentina and I believe it could be an advantage, compared to being in Palo Alto, London, etc. One could also make the opposite argument. What do you think?
Although I am based in Buenos Aires, I’ve been traveling my whole life, living for shorter or longer periods of time in other cities such as Leeds UK (I did part of my PhD there) and I currently travel to the US (I am a member of the American Association for Cancer Research and the Prostate Cancer foundation) 4 to 5 times a year, so I consider myself a global citizen. Having said that, I am a proud member of the University of Buenos Aires and CONICET, the National Council for Science and Technology where I pursued my scientific career, a true cradle of brilliant minds. Just as a reminder, we have 3 Nobel Prize winners! Leloir, Houssay and Milstein.
And everywhere I go there is an Argentinean researcher…maybe it has to do with our struggles and tenacity to overcome daily problems, maybe with the southern air or the mate… who knows?
Q3. Are you a geek and whether you are or are not, which apps do you use most often, professionally and personally?
Who’s NOT a geek nowadays? Personally I use most social networks (Instagram, Twitter, Facebook, Whatsapp, Telegram); professionally I use a few health and sport trackers such as Moves, PTracker, Mood Panda, Nike Plus.
Q4 How do your concerns about data protection play into your daily life? Do you refrain from using many of these apps? Or do you accept the risks?
Its funny; people are so concerned about privacy matters, but then again they share almost everything on Facebook or other social media platforms. I believe in data sharing and I know the biggest barrier is to keep user´s data anonymous and value their privacy. At Datadonors we encrypt the data. It is clear that people will engage more in data sharing if privacy is guaranteed. It is a good practice to use random codes to replace personal information and use encryption and other IT security practices.
I do believe that apps should have clear consent forms in regards to privacy risks. (We can see good examples at some of the new Apple Research Kit apps). However from the consent forms it is still clear that privacy cannot be fully guaranteed.
Personally, when choosing apps I recommend that account deletion be guaranteed. I do understand that my information cannot be removed from aggregated data. But if a user wants to leave the app, she/he can withdraw at any time, which means that the app should stop collecting new data, but the coded data that has already been provided and that has already been distributed will not be able to be destroyed or deleted. I like apps that collect minimal contact information. I also recommend consumers to choose apps that have open APIs.
Q5. How did your earlier work in cancer research contribute to your developing the vision of Wikilife and DataDonors?
I still do cancer research and I believe health is still a mystery. We see perfect healthy people that get terribly sick and on the other hand we see people genetically predisposed to getting a certain disease and not ever getting sick, those whom Dr. Stephen Friend called genetic heroes. What is it that we are missing?
We have an endless stream of new apps and health-tracking devices collecting terabytes of health data points, and this has been possible thanks to the involvement of leading tech companies (Google, Apple, Microsoft, IBM, Intel, etc) all of whom are investing heavily in medicine. They are bringing in technology with deep learning, predictive analytics and contextual computing. So now we have the computational power that can process all this health data more than any human being or any doctor could ever do. We are talking about the capability of artificial intelligence to learn and understand our data in real-time.
Q6. Would you give us a peek at your vision of the impact of the DataDonors initiative 10 years from now?
The rise of Wikipedia and other freely available communally developed portals of information has demonstrated that crowdsourcing data and the ample dissemination capabilities of the Internet can accelerate our understanding of health and fuel research in unprecedented ways.
The purpose of our project is to build a crowdsourced database of health genomic and lifestyle information that is freely available to all. We aim to become the Wikipedia of health, fostering breakthroughs in science and medicine that will improve the health of millions
In 10 years time, this program can profoundly impact advancements in health and wellness research, with a special emphasis on prevention.
• DataDonors improves the patient/doctor interaction by providing more insights about the patient’s life.
• DataDonors provides the global health community with a database that can be used by researchers, scientists and physicians worldwide to help in the generation of new scientiﬁc research behind healthy living.
• DataDonors empowers the developer’s community so that developers can create tools to analyze and understand health data for the general public. These tools help users to learn more about their behaviors and compare them with others, thus preventing unhealthy habits.
• DataDonors profoundly impacts advancements in user’s health and wellness by promoting behavioral improvement through relevant individual and group infographics.
Q7 Would you remind us how you find out about Doctors 2.0 & You and what makes you excited about participating?
I'm savvy when it comes to digital health. Doctors 2.0 & you is at the forefront of conferences related to this subject; and it is an enormous privilege to be a part of it this year.
Q8 A final couple of questions. Do you do any outreach to interest young women in STEM? And, with so many achievements, such as being identified as an MIT Innovator under 35, how do you stay so grounded?
I recognize that there is still an imbalance between men and women going into STEM careers. Being the mom of a young 6-year-old girl, I make sure I'm a good role model and that she understands she can go into any career she puts her mind to. At least she tells me that she wants to be a scientist!
I also try to apply what I do at home with my child in outside situations. For many years I used to serve as a tutor for young kids. I firmly believe that we have to engage girls in STEM, and this can only be done if we promote their curiosity at very early ages.
I'm grateful for the MIT Innovator under 35 award. It means we are doing a good job. I'm a social entrepreneur, and the DataDonors endeavor needs support from everyone. When we first started, people thought we were delusional. Why on earth we would waste so much time energy, money on this… and yes… there are people who still think this. But if you have passion, if you have questions that need to be answered and you can try to start unraveling them, then I believe it is worth it. We dream about integrating health data for humanity, so researchers worldwide can make amazing discoveries every single day, and who knows… those discoveries, might save your parents, yourself or even your children in a not very distant future. And bottom line… even if we don’t achieve all our goals, my team and I will have had the enormous privilege of making what seems impossible...possible.
A recent interview (in Spanish) with Geraldine.
Meet Geraldine on May 26-27, 2016 in Paris at Cité Universitaire.
See you at Doctors 2.0 & You,
Hear from Juliette Renouard, Janssen Digital Engagment Manager, about her job and her experience at Doctors 2.0 & You. #doctors20
Continuing in our interview series with participants at Doctors 2.0 & You 6th Edition, please meet Juliette Renouard, engineer and self-styled techie, who joined the pharma industry as a digital manager, after a solid experience in telecommunications.
Q1. Thank you for accepting the interview Juliette. Please tell us briefly about yourself and your work.
My name is Juliette Renouard. I have a master’s degree in engineering and worked for almost 20 years in telecommunications. Two years ago I decided to move to another industry, and I’m currently the Digital Engagement Manager at Janssen. This position has two main activities: to work with marketing and medical teams to launch digital communication and projects and to lead a new program to implement customer experience strategy.
Q2. Would you describe yourself as a techie or a geek or neither? What are the top 3 apps you use professionally and or personally?
I’d say rather techie than geek, I’ve been working on new technologies since my first job after school. I can’t live without my mobile phone and I’m quite an Apple addict. Professionally, my favorite Apps are Mail, Linkedin and Twitter. Personally, they are Facebook, Whatsapp and Withings.
Q3. You were with the mobile operator SFR before joining Janssen. How did you become interested in digital health?
When I decided to leave SFR, I had two goals: to take my digital knowledge to an industry outside of telecommunications and to find a more meaningful job. I first attended Meetups on the Internet of Things, a subject that is strongly linked to mobile, and with a particular interest for health solutions. That is how I discovered digital health. Because my professional career had been in a large company, I thought opportunities would be greater in pharmaceutical companies rather than in start-ups. I then learned that the pharma industry had to change its model and was making efforts to develop “beyond the pill” solutions. My transferable skills were in launching mobile apps and website for healthcare professionals and patients and also in managing new projects regarding the improvement of customer experience. So that was what I could bring to a pharma company.
Q4. We often hear about the obstacles to pharma success in digital. Are there any categories of digital activities from pharma where you have seen some good results?
Indeed there are many obstacles ! But there is one category, that pharma doesn’t always cover, where we have seen particularly good results: Facebook pages. Our pages have three objectives: to provide quality information about specific diseases, to give advice on how to live better with a disease, and to create a space where patients and families can speak about their disease and feel less alone. We have an excellent engagement rate on these pages, higher than pages in luxury and entertainment, for example, which proves the need and interest for this kind of contents.
Furthermore, Janssen has been present and active on Twitter for 2 years with a great increase of followers (1 428 followers)
Finally, as it’s a real objective for Janssen France to develop more digital services for patients, physicians, and also for employees, Janssen just launched an internal digital transformation plan few months ago. To develop a digital mindset internally, for example, will help us to reinforce our expertise, and I’m sure will lead to more and more digital activities for both physicians and patients.
Q5. What made you decide to attend Doctors 2.0 & You the first time?
I joined Janssen in January 2015 and to be completely honest, I had a very limited knowledge about the health environment and its digital “constraints”.
Doctors 2.0 & You seems to me to be the best place to learn more about national and international initiatives, to understand what can (and can’t) be done, and of course to meet digital health experts.
Q6. And once you were there at the conference, what did you see, and what made you want to return?
I attended many different sessions, since digital health means so many things: websites and mobile apps, social media and social media listening, serious games, online communities, connected devices,… for both patients and physicians.
At the first session I attended, which you moderated actually, I realized the power of some Patient Opinion Leaders (and was, with my naïve view, a bit disappointed by their sometimes “pharma-bashing” speeches…). But the conference really made me understand how digital can change the patient-physicians relationship and help patients with compliance.
A slide from the Patient Opinion Leader Session attended by Juliette
That’s the reason why I want to return to Doctors 2.0 & You to find international inspiration, to catch the future trends of digital health and to participate in the GloMAGO contest !
Doctors 2.0 & You was the first international conference in Paris to present Thierry Oquidam and the 3D assistive device developed thanks to eNable
The image at the top of the post reflects the top tweeters on conference hashtag #doctors20 represented on Symplur.com website. Tweet on that hashtag and join the online community.
Join us at Doctors 2.0 & You 6th Edition, being held on the only real campus in Paris proper!
See you soon, Denise Silber
Meet ex aerospace engineer, turned patient advocate, soon to be MPH: Andrea Borondy Kitts, Doctors 2.0 & You Speaker 2016 #doctors20
Tenth in the series of interviews leading up to Doctors 2.0 & You, Andrea Borondy Kitts has an exceptional story to tell. A former aerospace engineer, she is now on the cutting edge of lung cancer prevention and using social media to keep up to speed. Learn more by reading my interview with her.
Q1. Tell us a bit about yourself. How did you wind up in « digital health and social media ».
My husband Dan was diagnosed with lung cancer a year and a half after I retired as an aerospace engineer. So I went online and found the Inspire website with a very active patient and caregiver lung cancer community. I learned about new treatments, suggestions for helping manage his side effects and got a lot of emotional support. About 2 months before Dan died, I decided I wanted to be a lung cancer advocate. I was not even on Facebook nor did I have a smart phone., but I saw a post by Janet Freeman-Daily, inviting everyone to a tweetchat. By the end of the chat, I was hooked on Twitter and on social media for advocacy. It then took doing a class paper on social media and medicine to get me hooked on social media for patient empowerment, prevention and disease management.
Q2 What are some of the top apps you use?
The app I use most is Twitter for advocacy, for sharing information, and for connecting people. I use Facebook for advocacy and to keep up on family and friends. For lung cancer risk screening, I love the app by the Hungarian thoracic surgeon, Zalan. The app asks about risk factors, provides a risk score and the location of nearby screening risk sites. I have encouraged Zalan to enter the Doctors 2.0 and You best app contest. I was just introduced to a project management app, “Bootcamp” , used by the Massachusetts Secondary Prevention Cancer Sub-Committee I’m on. I find it more helpful than Trello.
Q3 How is social media in the area of lung cancer prevention and treatment progressing?
I’m very encouraged with the progress I see in social media and lung cancer. The twitter hashtag and tweetchats for the lung cancer community, #LCSM, have more participants. There are several new Facebook groups for the lung cancer community. Last week’s topic was managing metastatic disease and tweeters from all of the cancer twitter communities were invited. Within minutes of new research being published in lung cancer, or new drug being approved by the FDA, the information is posted on Twitter #LCSM with a link. I also see that the physicians that start using social media become more inclusive of patients and in many cases seek out patient input.
Q4. You are going to be involved in a hackathon. Tell us about it and how that happened.
I was contacted by Ruth Carlos, a radiologist I had worked with virtually on a PCORI proposal for lung cancer screening. She asked if I would be interested in being part of the planning committee for a hackathon. I have been intrigued by hackathons ever since I saw the presentation from last year’s Doctors 2.0 and You conference on a hackathon addressing diabetic patient needs. So, I said yes. In addition to being on the steering committee, I will be a speaker and a judge for the event. See the guest blog post http://e-patients.net/archives/2016/03/a-hackathon-for-open-access-check-it-out.html
Q5. You’ve been to Doctors 2.0 & You. What was the experience like? Why do you want to return?
This year, 2016, will be my third time at Doctors 2.0 and You. The first year, I had recently lost my husband and started advocating for lung cancer. As I was googling for MedX, I ran across the Doctors 2.0 and You conference in Paris. I was planning to visit my Dad who lives near Barcelona Spain, so I decided to sign up. I was a little apprehensive, but you Denise reached out to me. You invited me to dinner with some of the conference speakers the night before and in general made me feel very welcome. I met many wonderful and talented people at the conference. Some of the connections resulted in projects and other collaborations. I went back the next year as a speaker and was able to tell people about lung cancer screening and how social media influenced the decision for Medicare coverage. In the audience was a woman from the Institute Curie, a famous cancer hospital in Paris. She had never heard of lung cancer screening. She went back to her hospital and discussed it with her physicians. I sent her information and I know she shared it with the hospital. I look forward to my third year at Doctors 2.0 and You, catching up with old friends and meeting new ones.
Q6. How about the experience of participating in « Doctors 2.0 & You » on Twitter. What is that like?
I tweet often to #Doctors20 on topics outside of lung cancer. Primarily on patient empowerment, physician and patient teaming, on new technologies and the latest trends in including patients. The topic tweeted are engaging and provide the most recent information and trends on every facet of social media and medicine.
Q7. And please give us a teaser about what you might discuss in Paris, during your talk?
Our hackathon will address access to peer reviewed medical journal articles. At Doctors 2.0 and You I plan to describe the process, the planning, and the outcomes. We are live tweeting the event #JACRhack. Join us.
Here are some of Andrea's photo picks from Doctors 2.0 & You .
Follow the hashtag #doctors20 on Twitter.
Join Andrea and many more at Doctors 2.0 & You 2016 on May 26-27 in Paris at the beautiful green campus of Cité Universitaire. More info here.
See you soon, Denise
Don't forget to submit your recent apps, games, connected objects to GloMAGO. Read here: http://www.doctors20.com/glomago.html
Making an Impact at 17 on Children with Cancer, thanks to Social Media. Meet Kaat S. at Doctors 2.0 & You #doctors20
" A kind gesture can reach a wound that only compassion can heal."This quote is the first we read on Kaat Swaartebroecx's website. Thanks to the wonders of technology, I've had the great fortune to not only meet this amazing 17 year old from the oldest town in Belgium (population 30 000 today) but to also be able to include her as a speaker at Doctors 2.0 & You 2016. This is the 9th in our series of interviews.
That is a photo of Kaat above with some of the Dreamcatchers she has made by hand; in the interview, Kaat explains how social media has made it possible for her to connect with children suffering from cancer and to bring a form of healing to them and their families.
Q1. Would you tell us where you live, where you go to school, and a bit about you?
I am Kaat, 17 years old and I live in Belgium. My town Tongeren is in the southeast corner of the Flemish part. I’m in my last year of high school and I study human sciences. At a very young age (13), I realized that my passion is sharing my love with children who are fighting cancer. When I was 15; I had the privilege of starting my own organization with the support of my amazing parents who helped me become who I am. They are loving and caring and I’m very grateful for this! For the past 2 years, my mission has been to support the sick children and their families, by sending them a handmade, customized dream catcher in their favorite colors, for free, of course.
It’s so much more then ‘just a dreamcatcher’. The hope, love, prayers and support I send bring others to open their heart and let love flow in and beyond. Giving and sharing, supporting and inspiring!
Q2. At what age did you start using Social Media, such as Facebook? What do you do now with Social Media, besides working on DreamCatchers?
I was about 12 years old when I created my Facebook account. Facebook has been very present and especially valuable in the past 2 years. Before I started my project, I could never have imagined I would be so amazingly thankful for these communication tools, such as Facebook and Instagram. My life, my foundation, would not be the same without these social media tools. The number of children I would have reached by now, which is 800+, would have been tiny in comparison.
Thanks to social media I have been able to spread my love and prayers ALL over the world. It would be an understatement to say I’m incredibly thankful that these tools exist and that I’m able to use them on a daily basis!
Q3. How and when did you first notice that there were pages for sick children on Facebook and then get the idea to do something for them?
A now close friend who makes bracelets for sick children inspired me to create something by hand myself for these children. This is how I found a way to share my love with the children. The friend shared some of the pages with me and that’s how I reached the first families. Later on, when people heard about the foundation, parents started to request a dreamcatcher for their child, by sending me a message on the Facebook page, Instagram account or the website.
Q4. Besides Social Media apps, are there other Mobile Apps that you use frequently and what are they for?
Not that much so far. Photo editing apps, yes. For example when a child passes away, I edit the picture of the child with the dreamcatcher and the balloon I release in his or her honor. I send it to the parents, along with a message, to show them my ongoing support, love and sympathy.
Q5. You’ve created a foundation to support your work of producing and sending DreamCatchers to children around the world. And I know that you see results from what you do. Can you tell us how you find out about these results?
Everytime a child received his/ her DreamCatcher, the parent lets me know it arrived, and usually their reactions are amazing! They are so thankful for the smile you have put on their child's face, by a simple gesture, full of love, given with a kind and pure heart.
They feel the love and care with which it's made and their reactions are so pure and sincere. I feel so humbled and blessed everytime I receive such a heartwarming response. It gives me the energy to keep going!
Parents write me all of a sudden that their child has better and more peaceful nights after receiving the Dreamcatcher and telling the dreamcatcher legend to the child. A child can easily get attached to such a symbolic and precious thing as a Dreamcatcher. It's very humbling to see your creation having such a great impact on the lives of these families. The psychological effect on the healing process is greater than we could never have ever imagined. I'm still overwhelmed that my simple, loving gesture can bring these kind of breathtaking results.
Q6. You learned about Doctors 2.0 & You from a previous Belgian speaker, and you and I have spoken together as well. Why are you excited to be speaking in Paris in May at the 6th Edition?
I am super excited and grateful as well to be able to speak to such a large crowd! It is amazing to share my passion and love for these kids with so many! Also being able to spread my message all around the world gives me the feeling that by doing whatever you do with all your heart, you can reach your goal; mine is to love, care, give and share with those in need.
And look how far i've come in such a short period of time, just by following my heart and praying, I continuosly get steered in the right direction. I am blessed beyond words for being able to work with these children.
They are more than heroes to me.
Feel free to support Dreamcatchers for Golden Warriors foundation
And to join us in Paris at Doctors 2.0 & You. May 26-27, 2016.
PS Here is the Doctors 2.0 & You stage, with Margot van Fleteren, another amazing young Belgian woman using digital tools for health. Margot told us about Kaat.